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The Still Point of the Turning World – Emily Rapp


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Like all mothers, Emily Rapp had ambitious plans for her son, Ronan. He would be smart, loyal, physically fearless, level-headed but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about raising a family. They would have to learn to live with their child in the moment; to find happiness in the midst of …


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